e-Patient Dave deBronkart“Like Pulling Teeth:”The pain and struggle of extracting patient data from the jaws of the medical industry7 min read·Dec 21, 2020--1--1
e-Patient Dave deBronkartinTincture“New” Facebook vulnerability was reported a year ago. By patients.Yesterday the BBC reported “Facebook says it has discovered a new privacy flaw on its platform that lets some app developers access data…4 min read·Nov 7, 2019--1--1
e-Patient Dave deBronkartinTinctureRemember why PatientsLikeMe was formed: patients. The need’s still there.On social media the patient world is abuzz about the news that PatientsLikeMe, a trailblazing commercial patient community (but much more…4 min read·Jun 26, 2019--1--1
e-Patient Dave deBronkartinTinctureHL7 makes it official: #FHIR exists to serve patient needs.2019's US #FHIRDevDays event is finished, with a thrill: never have I seen a community of health IT people so committed to actually…6 min read·Jun 18, 2019----
e-Patient Dave deBronkartinTinctureThe #OpenAPS gospel: Dana Lewis sets DevDays on #FHIRPreviously, covering the #FHIRDevDays gathering at Microsoft headquarters near Seattle, I said “Tuesday I heard two blow-the-roof-off…5 min read·Jun 14, 2019----
e-Patient Dave deBronkartinTinctureYes, it DOES look like FHIR will enable Gimme My DataLast week I blogged a seven-part series ending with “Does FHIR provide what Google Health tried to?” Today I’m in Seattle at the…5 min read·Jun 13, 2019----
e-Patient Dave deBronkartinTinctureDoes FHIR provide what Google Health tried to?Part 7 of a series on my decade-long hunt (yes, since 2009) for true access to, control of, and use of our health data.8 min read·Jun 7, 2019--1--1
e-Patient Dave deBronkartinTinctureA movement is born: “Gimme My Damn Data”Watch this three minute video, and wonder: why would three Deloitte consultants (plus two sons and a wife) record a music video about…6 min read·Jun 7, 2019--1--1
e-Patient Dave deBronkartinTinctureMy health data errors exploded in the newspaper. Why?Part 5 in a series on the importance — and potential power — of access to our health data.7 min read·Jun 5, 2019--1--1
e-Patient Dave deBronkartinTinctureAn information quality trainwreck: Google Health revealed the mess in my hospital’s dataPart 4 of a series on the importance — and potential power — of patients’ access to our health data.5 min read·Jun 4, 2019--1--1
