e-Patient Dave deBronkart – Medium

e-Patient Dave deBronkart

“Like Pulling Teeth:”

The pain and struggle of extracting patient data from the jaws of the medical industry

Dec 21, 2020

“Like Pulling Teeth:”

Dec 21, 2020

Published in
Tincture

“New” Facebook vulnerability was reported a year ago. By patients.

Yesterday the BBC reported “Facebook says it has discovered a new privacy flaw on its platform that lets some app developers access data…

Nov 7, 2019

“New” Facebook vulnerability was reported a year ago. By patients.

Nov 7, 2019

Published in
Tincture

Remember why PatientsLikeMe was formed: patients. The need’s still there.

On social media the patient world is abuzz about the news that PatientsLikeMe, a trailblazing commercial patient community (but much more…

Jun 26, 2019

Remember why PatientsLikeMe was formed: patients. The need’s still there.

Jun 26, 2019

Published in
Tincture

HL7 makes it official: #FHIR exists to serve patient needs.

2019's US #FHIRDevDays event is finished, with a thrill: never have I seen a community of health IT people so committed to actually…

Jun 18, 2019

HL7 makes it official: #FHIR exists to serve patient needs.

Jun 18, 2019

Published in
Tincture

The #OpenAPS gospel: Dana Lewis sets DevDays on #FHIR

Previously, covering the #FHIRDevDays gathering at Microsoft headquarters near Seattle, I said “Tuesday I heard two blow-the-roof-off…

Jun 14, 2019

The #OpenAPS gospel: Dana Lewis sets DevDays on #FHIR

Jun 14, 2019

Published in
Tincture

Yes, it DOES look like FHIR will enable Gimme My Data

Last week I blogged a seven-part series ending with “Does FHIR provide what Google Health tried to?” Today I’m in Seattle at the…

Jun 13, 2019

Yes, it DOES look like FHIR will enable Gimme My Data

Jun 13, 2019

Published in
Tincture

Does FHIR provide what Google Health tried to?

Part 7 of a series on my decade-long hunt (yes, since 2009) for true access to, control of, and use of our health data.

Jun 7, 2019

Does FHIR provide what Google Health tried to?

Jun 7, 2019

Published in
Tincture

A movement is born: “Gimme My Damn Data”

Watch this three minute video, and wonder: why would three Deloitte consultants (plus two sons and a wife) record a music video about…

Jun 7, 2019

A movement is born: “Gimme My Damn Data”

Jun 7, 2019

Published in
Tincture

My health data errors exploded in the newspaper. Why?

Part 5 in a series on the importance — and potential power — of access to our health data.

Jun 5, 2019

My health data errors exploded in the newspaper. Why?

Jun 5, 2019

Published in
Tincture

An information quality trainwreck: Google Health revealed the mess in my hospital’s data

Part 4 of a series on the importance — and potential power — of patients’ access to our health data.

Jun 4, 2019

An information quality trainwreck: Google Health revealed the mess in my hospital’s data

Jun 4, 2019

e-Patient Dave deBronkart

e-Patient Dave deBronkart

International patient engagement advocate, speaker, author of Let Patients Help: A Patient Engagement Handbook, blogger

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